February 27, 2020

There’s a occurrence in immigration called “brain waste.”  It refers to what happens when highly-educated professionals from foreign countries can’t find jobs in their new country, because of language, certification, racial, or other legal barriers.  Engineers become taxi drivers, surgeons toss pizz...

February 17, 2020

We have a saying in Lyme Disease: “You don’t get it til you get it.”  This is true of all of life’s situations – chronic illness, addiction, parenthood, grief, socio-economic status, race, religion, everything, really.  You don’t understand the far-reaching consequences of a person’s circumstances u...

February 8, 2020

While preparing to ponder the meaning of Lent and how I can incorporate it into my life, I made the stirring discovery that my health journey began exactly 1600 days ago – 40 x 40 days.  The more I struggle to connect with God and keep faith on this tumultuous journey, the more I see myself in the s...

November 29, 2019

You don’t have to have a debilitating disease to feel like the joy of Christmas has been lost. The older we get, the more we lament the “good old days” when our senses were overwhelmed with twinkling lights, jingle bells, sugar cookies, and so many cousins! If these are all the things we love about...

November 14, 2019

‘Tis the season for giving, but if there’s someone with chronic illness in your life, you might not be sure what is an appropriate gift to give. Because of the limitations imposed by Lyme, old friends drift apart, new friends are hard to get close to, and even life-long family relationships can chan...

May 4, 2019

There are endless lists available of What Not To Say to the chronically ill. We’ve heard it all, we’ve done it all, and it’s really not helping. Feel free to browse them sometime and see if you might need to change your tune. However, I try to avoid fixating on these because we all have done and sai...

May 3, 2019

Redeeming The Wasted Days, continued (title pun intended)

Click for Part 1 and Part 2

“But now, O Lord, you are our Father; we are the clay, and you are our potter; we are all the work of your hand.”

Isaiah 64:8
 


The world we live in focuses on being finely glazed porcelain – be the best you can be,...

May 2, 2019

One of the topics I knew I’d need to write about since I built my website, as it so often plagues me, is the anguish of The Wasted Days. Especially in the beginning of an MSIDS journey, when your spoons are severely limited by acute illness, and spent on just understanding your condition, you p...

May 1, 2019

A really important concept in the Lyme-MSIDS and chronic illness community is Spoon Theory. I talk about my “spoons” a lot, then realize I’ve made a mistake when people look at me weird, and I have to explain Spoon Theory; ironically, I don’t have enough spoons to do it. So here’s the scoop (pun int...

April 24, 2019

People think of recovery as tomorrow being better than yesterday, every day, every week, a little stronger. But Lyme-MSIDS recovery, like the throes of the disease itself, is a roller coaster.

December 4, 2018

I subscribe to news feeds regarding Lyme disease, and people are always sending me the same articles.  I keep reading headlines that Avril Lavigne released a worship song. Avril Lavigne’s new single crossed over into the Christian markets. Avril Lavigne crossed over into Christian music. Avril Lavig...

August 13, 2018

(warning: blessed spoilers)
All excerpts from "The Hiding Place" by Corrie ten Boom with John and Elizabeth Sherrill; 1971.
 

There is an entire library worth of books on Lyme disease: information and research, treatment methods, memoirs, narratives, histories, you name it. When you’re in it for the...

July 16, 2018

I remember when I was young, sitting on the edge of a swimming pool, resting my feet just on the surface of the water and thinking of the story of Peter in the boat.

“Immediately [Jesus] made the disciples get into the boat and go before him to the other side, while he dismissed the crowds. And after...

June 13, 2018

“At evening you shall know that it was the LORD who brought you out of Egypt, and in the morning you shall see the glory of the LORD.”

Exodus 16:6-7

There are a few milestones of a Christian life that pop up along the way, that serve both to assure you of your progress, and remind you that it’s a lon...

May 29, 2018

You can't trust doctors. This lesson is two-fold, and each side is equally as shocking and important to learn.  On the one hand, it is literal, temporal, practical advice: the things you learn as you navigate the medical system with a little-understood illness dissolves all faith in physicians, and...

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