There are endless lists available of What Not To Say to the chronically ill. We’ve heard it all, we’ve done it all, and it’s really not helping. Feel free to browse them sometime and see if you might need to change your tune. However, I try to avoid fixating on these because we all have done and said insensiti...
One of the topics I knew I’d need to write about since I built my website, as it so often plagues me, is the anguish of The Wasted Days. Especially in the beginning of anMSIDS journey, when your spoons are severely limited by acute illness, and spent on just understanding your condition, you pass much ti...
A really important concept in the Lyme-MSIDS and chronic illness community is Spoon Theory. I talk about my “spoons” a lot, then realize I’ve made a mistake when people look at me weird, and I have to explain Spoon Theory; ironically, I don’t have enough spoons to do it. So here’s the scoop (pun intended):...
People think of recovery as tomorrow being better than yesterday, every day, every week, a little stronger. But Lyme-MSIDS recovery, like the throes of the disease itself, is a roller coaster.
I subscribe to news feeds regarding Lyme disease, and people are always sending me the same articles. I keep reading headlines that Avril Lavigne released a worship song. Avril Lavigne’s new single crossed over into the Christian markets. Avril Lavigne crossed over into Christian music. Avril Lavigne is now a...
(warning: blessed spoilers)
All excerpts from "The Hiding Place" by Corrie ten Boom with John and Elizabeth Sherrill; 1971.
There is an entire library worth of books on Lyme disease: information and research, treatment methods, memoirs, narratives, histories, you name it. When you’re in it for the long-haul,...
I remember when I was young, sitting on the edge of a swimming pool, resting my feet just on the surface of the water and thinking of the story of Peter in the boat.
“Immediately [Jesus] made the disciples get into the boat and go before him to the other side, while he dismissed the crowds. And after he had dis...
“At evening you shall know that it was the LORD who brought you out of Egypt, and in the morning you shall see the glory of the LORD.”
Exodus 16:6-7
There are a few milestones of a Christian life that pop up along the way, that serve both to assure you of your progress, and remind you that it’s a long journey t...
You can't trust doctors. This lesson is two-fold, and each side is equally as shocking and important to learn. On the one hand, it is literal, temporal, practical advice: the things you learn as you navigate the medical system with a little-understood illness dissolves all faith in physicians, and for good re...
